Site Content
Mayo Trip #1
Kirt had an appointment at Mayo in Rochester, MN. He saw Dr. Coffman and he ran him through some tests. He diagnosed Kirt with mild dystonia and prescribed Baclofen. "Dystonia is a movement disorder that causes the muscles to contract. This can cause twisting motions or other movements that happen repeatedly and that aren't under the person's control." (Mayo Clinic website) He also thought a neoprene postural support garment would help support his trunk movement. Kirt has an appointment in Topeka to get fitted for the garment.
In the afternoon, he met with the Pediatric Rehabilitation Medicine Consultation and she reported hip abduction was weak and monitoring his skin very important as she suspects poor distal sensation which predisposes him to skin injury.
The last appointment was with a physical therapist. She ran him through some more stretches and strength exercises.
Kirt kept his joyful spirit alive during all the appointments we had and did a great job listening to all the Dr.'s cues.
Mayo Trip #2
We will go back to Mayo November 25th. Kirt will have a Gait/Motion analysis done and a swallow test.